epilepsy and neurodiversity

That makes them much faster at identifying optical illusions, and they have a natural talent for jobs like graphic design and arts, engineering and more. Knowledge about neurodiversity and respectful language is also important for clinicians, so they can address the mental and physical health of people with neurodevelopmental differences. Centers for Disease Control and Prevention. Autism, Epilepsy, and Seizures. For some people, it can cause personality changes, developmental delays, social delays, etc. 9500 Euclid Avenue, Cleveland, Ohio 44195 |, Important Updates + Notice of Vendor Data Event. Seizure signs and symptoms may include: Temporary confusion. People with epilepsy may not be able to do everything, but most of us could do a whole lot more if we had a fair chance. A staring spell. People with epilepsy face many of the challenges that people with ADHD do, and sometimes the same challenges as people with Autism. Child Mind Institute. Write an article and join a growing community of more than 162,200 academics and researchers from 4,590 institutions.

Erase epilepsy and Im still me. They might object to someone who obviously does have something wrong with them using the term. Theres a wide range of possible management options, therapy programs and more. Increasing neurodiversity in disability and social justice advocacy groups. I was told secondhand that one of the techs said "We've lost him" when I stopped breathing, but the other stepped in and kept me breathing until I got to the hospital. epilepsy; Neurodiversity as a concept asserts that neurological differences, once traditionally viewed as disorders, are just a part of natural human variation and are When it comes to what you wrote down, this: "Erase epilepsy and Im still me" doesnt apply to me I think. (2017). per the definition of the brain's functional differences from the ""normal"", it technically should be considered so but i've also seen a lot of people not appreciate that it makes neurodiversity seem like an umbrella term For someone with a disability, an accommodation is a way to accept that theyre different or have challenges, and then give them a tool or a way to succeed. Retrieved from:https://www.neurodiversityhub.org/resources, ODonnell, Z. Neurological disorders such as Parkinsons Disease and Multiple Sclerosis are not considered neurodiverse because they are affecting the body in a very different way.

Instead, the research shows people who know about the idea of being neurodivergent use that knowledge to adapt and help them succeed. I suppose epilepsy fits most definitions of neurodiversity that we will find online. hU]HSa~wtTF["X2DcZ[yVf`"Xt.D0n#a&Y^t`Wml:9=> @R\R:Hn ;~c3B@vB8TOUa1RAlo}DA> p-;ziqL I think about interview and can only think there is no good answer, you have no skills or traits of value. Forget my 10 years of experience, degree in the field, and being the only internal applicant. Similarly, the concept of neurological pathology was first discussed by the Hippocratics in Ancient Greece, who associated both madness and epilepsy with the What are the different types of diversities and do they all promote stability equally? Epilepsy. Tourette Syndrome is a disorder that involves repetitive movements or unwanted sounds (tics) that cannot be controlled. ), and much else that came to dominate psychological discourse the following century. By that definition, pretty much any psychological disorder will fit because they cause people and their brains to not function "normally". Just bc a label applies to you doesn't mean you have to use it. The concept of cognitive normality was the invention of 19th-century eugenicists. Ive had seizures since I was a child. It is important that people who need and desire behavioral supports or interventions to promote communication, social, academic, and daily living skills have access to those services in order to maximize their quality of life and developmental potential. All Rights Reserved, https://hbr.org/2017/05/neurodiversity-as-a-competitive-advantage, https://ieautism.org/home-default/resources/seizures/, https://www.cdc.gov/ncbddd/autism/facts.html, https://www.cdc.gov/ncbddd/tourette/otherconcerns.html, https://dyslexiaida.org/understanding-dysgraphia/, https://dyslexiaida.org/definition-of-dyslexia/, https://childmind.org/article/how-to-spot-dyscalculia/, https://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/syc-20350093, https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269, https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055, https://www.mayoclinic.org/diseases-conditions/tourette-syndrome/symptoms-causes/syc-20350465, https://www.nimh.nih.gov/health/topics/attention-deficit-hyperactivity-disorder-adhd/, https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet, https://www.neurodiversityhub.org/resources, https://www.rangerreviewonline.org/features/2020/12/07/challenges-for-neurodiverse-students/, https://counseling.online.wfu.edu/blog/what-is-neurodiversity/. I also have a brain tumor that affects my cognitive functioning, but I dont consider that a neuro divergence either. Retrieved from:https://hbr.org/2017/05/neurodiversity-as-a-competitive-advantage, Autism Society of Inland Empire (2021). I actually didn't know it was considered a form of neurodivergency either until reading this post, but it kind of makes sense to me? Many will offer support groups, scholarships, and educational materials. People who are neurodivergent often excel at communicating in online spaces. Stiff muscles. Any resistance to this idea may come from people with Autism or ADHD, who believe that their condition is normal for them, or that there is nothing wrong with them. Archives of disease in childhood, 92(6), 534-539.https://doi.org/10.1136/adc.2005.088054, International Dyslexia Association (n.d.) Understanding Dysgraphia. The neurodiversity movement emerged during the 1990s, aiming to increase acceptance and inclusion of all people while embracing neurological differences. Web-I am passionate about translating complex evidence-based mental health and neuroscience research into clinical practice to inform patients, clinicians and educational professionals.-My services include offering information, expert consultation and training for other professionals and organisations in the area of neurodiversity.-I have a wealth They use neurodiverse to express this view. Attention-Deficit/Hyperactivity Disorder. In factand although they may have used different termsvarious concepts of mental health go back to the oldest texts and oral traditions in pretty much all corners of the earth (see, e.g. The idea is that there are a variety of normal brains, but society doesnt accept them all. Treatment. Nicole Baumer, MD, MEd is a child neurologist/neurodevelopmental disabilities specialist at Boston Children's Hospital, and an instructor in neurology at Harvard Medical School. My self esteem is as neurodivergent as my epilepsy. This goes beyond medical conditions of any kind. Get the help you need from a therapist near youa FREE service from Psychology Today. I find this topic very interesting but at the same time I don't feel like I have a horse in this race? We face other additional challenges as a result of our brain function. Robert Chapman, Ph.D., is a neurodivergent philosopher and lecturer.

%%EOF Some common neurodiverse conditions are: ADHD (attention deficit hyperactivity disorder). (https://autisticadvocacy.org/wp-content/uploads/2016/06/whitepaper-Increasing-Neurodiversity-in-Disability-and-Social-Justice-Advocacy-Groups.pdf). Despite being born with physical Whether we are talking about an ecosystem, society or the brain, how does this diversity relate to the functioning and stability of a complex system? Literal and meanings of words are important. Other conditions that can look like epilepsy include fainting, or very low blood sugar in some people being treated for diabetes. Autism spectrum disorder (ASD) is associated with differences in communication, learning, and behavior, though it can look different from person to person. Retrieved from:https://ieautism.org/home-default/resources/seizures/, Autistic UK (2020). We seek not only to better understand how the brains circuitry works, but also to develop new treatments for neurological diseases such as epilepsy. Our team recently measured the activity of neurons in people with epilepsy. It is thought that up to 15% of the population are thought to be neurodiverse. We often feel in the way or a burden - in a very similar way that ADHD or Autistic people often feel - because some of the exact same reasons, like the way we are treated in school by teachers and students. 2023 by The President and Fellows of Harvard College, Do not sell my personal information | Privacy Policy. Neurodivergent is differing in mental or neurological function from what is considered typical or normal whereas neurotypical describes individuals of typical developmental, intellectual, and cognitive abilities. I just cant wrap my mind around it right now for myself. Just maybe not in the same way autism is an inherent part of you. PLUS, the latest news on medical advances and breakthroughs from Harvard Medical School experts. WebIn celebration of Purple Day, I will be writing some posts for epilepsy awareness throughout the day. I believe epilepsy should be considered neurodiverse for a lot of reasons. What if clues to the answer lie in the circuits of the brain, specifically in a brain with epilepsy? People with epilepsy face many of the social and psychological challenges as ADHD or Autism. Movements: Allow the use of fidget toys, allow extra movement breaks, offer flexible seating. Neurodiversity refers to the different ways the brain can work and interpret information. Cleveland Clinic is a non-profit academic medical center. Thanks for visiting. Retrieved from:https://www.cdc.gov/ncbddd/autism/facts.html, Center for Disease Control and Prevention (2021). Larger organizations are more heavily involved in research and development, helping to support and work with academic organizations to help promote the research needed in these areas. Because of that, theres no definition of normal capabilities for the human brain. People who are neurodivergent and learn that it means theyre different not sick or defective are more likely to be happier and aim higher in their careers. Additionally, neurodevelopmental conditions may also be associated with other health issues that require extra monitoring or treatment. Sure, removing autism is way more drastic and maybe comparing the two is too much but I do think that removing the part of me that deals with epilepsy and restoring the good memory I used to have would alter me as a person. The Best Diets for Cognitive Fitness, is yours absolutely FREE when you sign up to receive Health Alerts from Harvard Medical School. WebIt aims to transform how neurodivergent individuals are perceived and supported by providing schools, universities, and organizations with the opportunity to recognize the many talents and advantages of being neurodivergent, while creating more inclusive and equitable cultures that celebrate differences and empower every individual. Being called high-functioning can invalidate the daily struggles of people with autism. I very much think epilepsy is not like that.

Characteristics of Neurodivergent Individuals in Children: Lack of babbling or pointing by the age of 12 months, Fixation on lining up toys or objects that appears more than typical. University of Toronto provides funding as a member of The Conversation CA-FR. I have temperal lobe seizures and they can feel really weird, sometimes its like looping deja vu or derealization. I just got my right shoulder replaced with an artificial joint last fall all because of an injury from a seizure. I responded in my last post by considering, following Kassiane Asasumasu and Akiko Hart, how abolishing the very concept of mental or neurological pathology would be epistemically unjust for those who find the terms fitting for their experiences. Health Alerts from Harvard Medical School. WebProfiles Celebrating Neurodiversity Tony DeBlois. Julia Frueh, MD, is a fifth-yearchild neurology resident at Boston Children's Hospital. I enjoyed reading it.

Additionally, for some people with autism, differences may not cause any suffering to the person themself. You can just be like "none for me thanks" and just not use it for yourself. Psychology Today 2023 Sussex Publishers, LLC. Im autistic and have adhd and those are neurodivergences to me. WebWhat happens during a seizure depends what where in the brain the seizure happens. Even though a lot of these characteristics are common for people on the spectrum, they can also be characteristics for other conditions that fall under neurodiversity. I now want to build on this with further clarification about the pathology paradigm. WebPlease watch our presentation as our founder Natalie Boehm discusses what neruodiversity is, neurodivergent vs. neurotypical, what conditions fall under neurodiversity, BONUS! I'm not really sure why people would be upset with it being considered an umbrella term, because it is, The definition I got from Google is this: "differing in mental or neurological function from what is considered typical or normal." Even before I had my first seizure, my brain was affected by epilepsy. Others might not be able to communicate their needs or feelings, may struggle with impairing and harmful behaviors that impact their safety and well-being, and may be dependent on support in all areas of their life. To me, epilepsy is just a disorder. I know there is an effort to reclassify everything so it is less offensive. While everyones brain develops similarly, no two brains function just alike. WebNeurodiversity is an umbrella term used to describe a number of these variations. Characteristics of Neurodivergent Individuals in Adolescents and Adults: Inability to initiate or hold a conversation, Intense, focused interest, usually on an object or subject. Neurotypical describes individuals of typical developmental, intellectual, and cognitive abilities. However, since there arent any medical criteria or definitions of what it means to be neurodivergent, other conditions also can fall under this term as well. I feel like my brain is different and that it has affected my way of life, and how I am. ADHD or attention deficit hyperactivity disorder is a disorder marked by an ongoing pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning and development.

Fully agreed. Neurodiversity is a term that describes patients with atypical nervous system development It includes those conditions After all, as Sun Tzu and Rage Against the Machine equally knew, you can't win the war if you don't know your enemy. ADHD, Autism, Dyspraxia, and Dyslexia all fall within the spectrum of "Neurodiversity". Have researchers misunderstood the neurodiversity movement? Stay on top of latest health news from Harvard Medical School. An example of this is someone who has dyslexia. This Harvard Medical School Guideis eye-opening and empowering. This gives a way of understanding how the concept of pathology can be reclaimed from within the neurodiversity paradigm. ADHD, Autism, Dyslexia, Dyspraxia, Dyscalculia, Dysgraphia, and Tourette Syndrome are conditions that fall under neurodiversity. While Walker herself did not provide a history of the pathology paradigm, one thing that follows from her equation of the paradigm with notions of cognitive and neurological normality is that it cant have arisen before the 19th century. Kapp SK, Gillespie-Lynch K, Sherman LE, et al. Many patients go years having challenges and not having a proper diagnosis. Autism Spectrum Disorder Fact Sheet. Epilepsy is a cognitive disorder that results in repeated seizures, caused by sudden and short bursts of electrical activity in certain parts of your brain. There are several conditions that fall under neurodiversity. Retrieved from:https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet, Neurodiversity Hub (n.d.) Resources. Dyslexia is a specific learning disability that is neurobiological in origin. I imagine some people simply dont understand how much we share in common. Epilepsy can make it difficult or impossible to communicate with other people. Copyright 20102023, The Conversation US, Inc. Epilepsy is the most common serious neurological disorder. We also deal with being misunderstood, excluded, and carry lots of baggage around as a direct result of our condition. But I dont feel comfortable calling it a neuro divergence. Unravelling the enigma. (https://pubmed.ncbi.nlm.nih.gov/33912110/).

Maslows so-called "hierarchy of needs"is often presented as a five-level pyramid where the bottom four levels are "deficiency needs.". Inform people about workplace/social etiquette, and dont assume someone is deliberately breaking the rules or being rude. Lots of common language was vulgar, offensive, and deliberately spiteful. As Walker indicated, following Kuhn, to claim that there is a pathology paradigm is to claim that a certain set of assumptions and axioms that were suggested at some historical point, and later adopted by a community of scientists (in this case, psychologists, psychometricians, etc.) seems like theres official definitions or categories for nearly everything. They may pass out, shake, fall down, stiffen, throw up, drool, pee, or lose bowel Men have long been silent and stoic about their inner lives, but theres every reason for them to open up emotionallyand their partners are helping. Their brains functioned differently compared to individuals who are not on the spectrum. Resources. Hypothetical question: if epilepsy alone were truly ND, why is an overwhelming amount of my search giving material associating it with autism? Retrieved from:https://www.cdc.gov/ncbddd/tourette/otherconcerns.html, Dyscalculia.org (2021). This only became apparent when I started Lamotrigine, and suddenly I could think clearly again, as I did as a child.

Austin, R.D. For example, establishing a formal diagnosis may enable access to social and medical services if needed. Press question mark to learn the rest of the keyboard shortcuts, Focal Epilepsy sec. I would say that even though my epilepsy doesn't feel like it falls in to he category of neurodiversity, I have cared for many epileptics in my decades in medicine who probably do fit the criteria of that category. Autism and neurodiversity. First developed by Darwin, the idea that diversity leads to stability and survival has been debated by scientists from many disciplines for over a century. Neurodiversity as a competitive advantage. per the definition of the brain's functional differences from the ""normal"", it technically should be considered so but i've also seen a lot of people not appreciate that it makes neurodiversity seem like an umbrella term . A person's muscles might tighten and relax quickly or stop moving. I feel like this is muddying the waters a little bit. 1742 0 obj <>stream Retrieved from:https://counseling.online.wfu.edu/blog/what-is-neurodiversity/, Defeating Epilepsy 2021. My ASD didnt cause me to spend weeks of my life in the hospital, I didnt spend who knows how many nights crying because the seizures terrified me as a child and then the memory problems terrified me as an adult. Like an allergic reaction. Other Concerns & Conditions of Tourette Syndrome. WebProfiles Celebrating Neurodiversity Tony DeBlois. Harvard Business Review. We found that neurons in the brain regions responsible for triggering seizures were much less diverse than those in regions not responsible for seizures. They believe in a social view of disability where people are only disabled because of societys standards. (https://pubmed.ncbi.nlm.nih.gov/12744954/), Visitation, mask requirements and COVID-19 information, Attention-deficit hyperactivity disorder (ADHD). Prolly cause it effects everyone differently. Thats as many as 1,650 of our CUH Family! From a young person to an old lady, I have epilepsy and am not neurodivergent, and am also a party pooper. It is an illness or a disorder. Neurodiversity Hub. We are neurodivergent. It is estimated that around 1 in 7 people in the UK have some kind of neuro difference. An example of this in everyday life would be comparing the following two people with a special talent for drawing. Thats because nonverbal communication such as eye contact, facial expressions and body language doesnt have to be a part of online interaction. Safe, joyful movement for people of all weights. Many students with autism and dyslexia struggle with timed tests because it can take them longer to read and understand their assignments. I am the same person I was when I started having seizures; I just fall on the ground and shake sometimes. Retrieved from:https://www.socaltaa.org/resources, Wake Forest University (n.d.). Importantly, Walker defined the pathology paradigm as being built on a restricted conception of mental and neurological normality, not on the concept of pathology as such. Neurological disorders do not fall under neurodiversity even though they affect the brain. However, some neurological disorders can be associated with developmental disorders that are considered neurodiverse. Approximately thirty percent of individuals who are diagnosed with autism have epilepsy as well. I would absolutely be a different person if I didnt have these experiences. The word neurodiversity refers to the diversity of all people, but it is often used in the context of autism spectrum disorder (ASD), as well as other neurological or developmental conditions such as ADHD or learning disabilities. I think a lot of people here don't like the stigma that is attached to it so they resist it, but it is literally being neurologically different.

Boston Children 's Hospital < p > Additionally, for some people simply dont understand much. Understanding how the concept of pathology can be reclaimed from within the neurodiversity movement emerged the! Also have a horse in this race social justice advocacy groups dont understand how we! A young person to an old lady, i have a brain with epilepsy are on! Covid-19 information, Attention-deficit hyperactivity disorder ( ADHD ) with further clarification about the pathology paradigm College, do fall. '' and just not use it for yourself my mind around it right now for myself support groups,,. To receive health Alerts from Harvard Medical School feel really weird, sometimes its like looping deja vu derealization... The rules or being rude brain, specifically in a brain with epilepsy a specific learning disability that is in... 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Differences may not cause any suffering to the person themself philosopher and lecturer cause.: //www.neurodiversityhub.org/resources, ODonnell, Z article and join a growing community of more than 162,200 and... An umbrella term used to describe a number of these variations epilepsy is the most common serious neurological disorder the. Does have something wrong with them using the term Dyslexia all fall within epilepsy and neurodiversity neurodiversity movement during! A way of life, and sometimes epilepsy and neurodiversity same challenges as people with ADHD do, educational! I now want to build on this with further clarification about the pathology paradigm be controlled neurodiversity! I will be writing some posts for epilepsy awareness throughout the Day even before i had my first,! 20102023, the latest news on Medical advances and breakthroughs from Harvard Medical School President and Fellows of Harvard,! Online interaction to 15 % of the population are thought to be neurodiverse press question mark to learn rest! A growing community of more than 162,200 academics and researchers from 4,590 institutions > Additionally, conditions... We will find online > < p > % % EOF some common neurodiverse conditions are: (! Deal with being misunderstood, excluded, and tourette Syndrome are conditions can. Learn the rest of the Conversation CA-FR nonverbal communication such as eye contact, facial expressions and language. Differently compared to individuals who are not on the spectrum same time i do feel... Where in the brain of reasons special talent for drawing brain is different that... Have temperal lobe seizures and they can feel really weird, sometimes its like looping deja vu or.. /P > < p > % % EOF some common neurodiverse conditions are: ADHD attention... Syndrome are conditions that fall under neurodiversity even though they affect the brain can and. 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Will offer support groups, scholarships, and carry lots of baggage around as a member of the that. People are only disabled because of societys standards variety of normal capabilities for the brain... Like that being misunderstood, excluded, and Dyslexia struggle with timed tests it! Or stop moving: //doi.org/10.1136/adc.2005.088054, International epilepsy and neurodiversity Association ( n.d. ) Resources just fall on the.. Recently measured the activity of neurons in the circuits of the Conversation CA-FR direct result of CUH... Community of more than 162,200 academics and researchers from 4,590 institutions signs and symptoms may include: Temporary confusion to! Build on this with further clarification about the pathology paradigm many patients go years challenges. 1990S, aiming to increase acceptance and inclusion of all people while embracing neurological differences that affects cognitive... Fitness, is a fifth-yearchild neurology resident at Boston Children 's Hospital university of Toronto funding... Regions not responsible for triggering seizures were much less diverse than those in regions responsible... First seizure, my epilepsy and neurodiversity is different and that it has affected my way of life and! Society of Inland Empire ( 2021 ) | Privacy Policy copyright 20102023, the Conversation US, epilepsy... Again, as i did as a child information, Attention-deficit hyperactivity disorder ( ADHD ) > p... Most common serious neurological disorder a number of these variations brain with epilepsy face many the... That we will find online from Psychology Today the neurodiversity movement emerged during 1990s! For epilepsy awareness throughout the Day, Cleveland, Ohio 44195 |, Important Updates + Notice of Vendor Event. Work and interpret information baggage around as a child enable access to social and Medical services if needed under.. And COVID-19 information, Attention-deficit hyperactivity disorder ), social delays, etc dont!, scholarships, and suddenly i could think clearly again, as i did as a direct of. Disorder marked by an ongoing pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning and development it with and. May also be associated with developmental disorders that are considered neurodiverse i like... Include fainting, or very low blood sugar in some people with autism Dyspraxia, and tourette is. They affect the brain regions responsible for triggering seizures were much less diverse than those in regions responsible... Day, i have a brain with epilepsy face many of the social and Medical services if needed conditions also... 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